Should money come into it? A tool for deciding whether to pay patient-engagement participants
Should patient and family-caregiver participants be paid? It’s a growing question as patient engagement activities become more common. The Foundation has designed an easy-to-use tool, to help us decide on a case-by-case basis. We now offer this tool to other organizations. You are free to adopt it as is, adapt it for your needs, or use it as a springboard to discussion. In this brief, straightforward paper, you will also find pros, cons and expert opinions on the philosophical and practical issues involved. A note about process: We developed the decision tool with input from our own key patient engagement group, the PANORAMA panel.