Gillian Eastgate, School of Health Sciences and Medicine, Bond University Funding: PHCRED Research Network Team members: Professor Mieke Van Driel, Dr Elly Scheermeyer, Professor Nicholas Lennox

Improving preventive and complex care and closing the gap in health care inequities, with special attention to vulnerable populations, are priorities in reforming Australian primary health care (PHC) policy and practice. Taking action on these priorities demands that gaps and unmet needs are uncovered and this research has done so in the area of intellectual disability.

This is the first known Australian study to gain direct, first-hand information from people with intellectual disability regarding their experiences of sexual relationships and sexual abuse. Women with intellectual disability are at high risk of sexual abuse. Previous research suggests sexuality education is associated with better self-protection. However, this study’s interview participants reported that they had received little or no sexuality education.

Several reported severe and ongoing abuse with significant social and health consequences. They found it difficult to avoid abuse situations, and lacked support to do so.

By providing a unique albeit disturbing picture of the sexual experiences of women with intellectual disability, this important research reveals a gap between evidence and practice. A follow-up study with care providers is planned to identify some of the barriers to providing sexuality education and support for this vulnerable population group.

This research demonstrates the value of involving people with intellectual disability in research about sensitive topics that have a direct impact on their health.